Latest Episodes
Elizabeth on her comeback and book: The Toll it Took
Elizabeth was a teen athlete when she first became bed bound with POTS and several other conditions including narcolepsy, epilepsy and gastroparesis. After 5...
Excessive sleep, fatigue and insomnia in POTS WITH Dr. Kirti Sivakoti
Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and...
299
Julie on the lengths she had to go to for recovery
Julie's recovery from POTS and other serious conditions involved an epic tale of sheer determination, next-level advocacy, some unconventional treatments (which we are not...
Dr. Dempsey’s cutting edge treatments (part 2) - Mast Cell Matters
Dr. Dempsey is always looking for new therapies that may help her complex patients. In this episode Dr. Dempsey discusses how she incorporates treatments...
262
Maggie on being both patient and Mental Health Therapist
Maggie was 14 when she started passing out regularly, and she still does occasionally, but that didn't stop her from getting back to school,...
277
The Dysautonomia Workbook with Joanna Behm, EDD OTR/L and Madison Thornton, OTD OTR/L
Joanna Behm, EDD OTR/L and Madison Thornton, OTD, OTR/L are experts in occupational therapy (OT) as therapists, dysautonomia patients, and Joanna is even a...